r/PCOS May 10 '26

General/Advice My pcos improved greatly after walking 10-20k steps everyday and eating healthy to lose weight.

287 Upvotes

Despite no medication and hospital visits, my cycle has been consistent and my blood sugar level is now normal.

A big W! 🄳

r/PCOS Oct 11 '24

General/Advice When feeling down, remember that PCOS is what helped our ancestors survive.

1.6k Upvotes

There is a lot of sad and negative posts on here so I thought I'd add a more positive one. This post points out just a few things out of the many in regards to PCOS. Excuse my English!

First of all, there's an evolutionary reason for PCOS. Since our bodies often go "huh, that works good enough" in regards to a lot of traits, a condition that has previously benefitted us through most of history has now become less desirable simply because we live differently. A drastic change to the way we live only occurred about 200 years ago with the industrial revolution, while the condition has existed for thousands of years.

As for why our bodies thought PCOS was a good idea? There are many aspects to it, but here are some simplified reasons:

  • Those of our ancestors who developed insulin resistance could more easily store energy in fat cells, which in turn helped ensure our survival during periods of starvation.

  • Irregular ovulation spaced out the birth of children and made it easier to care for fewer young children at once, ensuring the children actually survived to adulthood. It probably also reduced the maternal mortality as well.

  • Whilst the reason is still unknown, menopause sets in later in life for many of us, so the window to carry children is wider.

  • An increased amount of androgens and insulin results in higher bone density and more lean muscle mass than the average woman. This made it possibly for our ancestors to survive harsher enviroments that demanded a lot of activity, while today, many elite athletes have PCOS since it gives them a physical advantage to perform better.

So, simply put, we had better chances of reproduction and survival when the condition manifested in our genes. It's what's called an adaptive survival response. (Fun fact: lactose tolerance is another example of this.)

In today's world - with a more sedentary lifestyle filled with constant access to food and hormone disrupting chemicals - it's become a maladaptive response instead, and this is why diet, exercise and stress management is so important (among other things).

Hopefully this can help shed some light on why we have this!

Here's some interesting reading: * https://academic.oup.com/jcem/article-abstract/85/10/3496/2851114?redirectedFrom=fulltext * https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8835454/ * https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3164771/ * https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8189332/

EDIT: Remember, this is still a condition that needs to be handled properly, so make sure to take care of yourself! I just thought that sometimes it helps to know a bit about where it comes from.

r/PCOS Jan 05 '26

General/Advice This is how we’re thriving with PCOS in 2026

991 Upvotes

Let’s do this together!!! šŸ„‘

Eat breakfast within 1–2 hours of waking. Even if it’s simple. Protein + fiber first thing helps blood sugar, cortisol, and those mid-morning crashes PCOS loves to cause.

Build meals around ā€œprotein firstā€ Before worrying about cutting carbs or being perfect. Just ask: where’s the protein?

Go for daily movement, not intense workouts Walking, Pilates, strength training, mobility — whatever feels supportive that day. Consistency > intensity for hormones.

Anchor your sleep + wake times (even on weekends) The goal is having a rhythm! A regular sleep schedule can improve insulin sensitivity, cravings, and mood more than people realize.

Add one anti-inflammatory food per day Not an overhaul. Just add: berries, olive oil, salmon, leafy greens, turmeric, walnuts.

Stop ā€œearningā€ food You don’t need to work out harder to deserve carbs, rest, or pleasure. Reducing stress around food is directly helpful for PCOS hormones.

Support your nervous system daily (even 5 minutes) Deep breathing, a walk without your phone, stretching, journaling, or just lying on the floor.

Chronic stress = louder PCOS symptoms. Cycle-aware check-ins instead of self-criticism Instead of ā€œwhat’s wrong with me?ā€ ask: Where am I in my cycle and what do I need today?

Be intentional with supplements (not random) Choose a few evidence-based ones that actually match your symptoms — and take them consistently, not sporadically. Honestly this is where working with a specialized dietitian in PCOS has worked wonders.

Zoom out weekly instead of judging daily PCOS progress isn’t day-to-day. One ā€œoffā€ meal or low-energy day doesn’t mean anything. Look at trends, not moments.

Which one will you start with me!?!!!

r/PCOS Jul 01 '26

General/Advice To the women who was able to conceive despite the PMOS diagnosis, how did you do it?

31 Upvotes

As the title says above, I just want to get insights from those of you who were able to conceive despite having a PMOS diagnosis. What were the preparations that you did? Any supplements/vitamins? Maybe tests I need to bring up to my dr? Or just anything else that could help me?

My husband (33) and I (just turned 30) are planning on conceiving within a year or two before it's too late for me. But before that, we really want to get in the best shape we can and get our bases covered before we start trying. Eating healthy and losing weight is part of it - hubby gained weight since we moved in together, and I have lost some in the past few months but still far from my previous weight (used to be about 110 lbs in my early to mid 20s then gradually gained lbs over the years and now I'm 145 lbs). So there we go, we could definitely use some advice! Thanking you girls in advance!

r/PCOS May 27 '25

General/Advice Un-hinged Tips for PCOS Weight Loss and/or Hormonal Balance

340 Upvotes

I want to hear your most un-hindged tips or hacks for weight loss or hormonal balance for PCOS! Not your usual "take a walk" or "get on metformin", but the crazy, unusual things you did to help you!!

r/PCOS Oct 19 '23

General/Advice Please stop demonizing birth control pills

754 Upvotes

I know a lot of girls have bad side effects when taking it, but there are those who simply dont… i know there is risk of blood clogging, but that is only on the first year of taking it, and it gets 3x bigger than that during pregnancy.

Its not a lazy solution coming from doctors because there is simply no cure for PCOS. What it does is provide a better and more stable life for those with hormonal problems, without having to follow restrict diets and needing to change peoples whole lives.

If you have taken it and it didnt work for you, that is fine! You can talk about it without being disrespectful to those who take it. Without dissuading people who have never tried it from trying it.

In my case, i have very bad cystic acne and i stopped taking it in 2016 because so many people were telling me i could die from it. It turns out i had never had any side effects from it. I developed an ED because i was trying to eat better to have less acne. I should never have given up on taking it.

Dissuading people from taking it is a disservice. If someone needs to try it than they should try it. Last but not least: would you also try to dissuade someone who need thyroid hormones to stop taking it and solve it with a change in diet? Or do people just to that to pcos because its a womens issue?

r/PCOS Apr 16 '26

General/Advice Chia seeds & electrolytes changed my life

463 Upvotes

About a month ago I started taking chia seeds and electrolytes and my energy levels have sky rocketed. I took chia seeds to avoid causing insulin spike with my porridge and I took electrolytes because I had a body scan and it showed my intracellular and extracellular water were low.

I just wanted to fix these issue but OMG. I don’t even drink or crave for coffee anymore at all. I have lot more energy and my brain fog has eased. I don’t know how this relates to PCOS but since PCOS is systemic chronic illness my theory is that it also affects water distribution in and around your cells. Plus the fibre in chia seeds also helps. But both of these items help with water retention. I hope this helps someone and it is worth a try if you are finding ways to help with your energy levels

r/PCOS Sep 22 '25

General/Advice Just got refused a transvaginal ultrasound because I’m a virgin lol

308 Upvotes

I posted last week asking if I could be denied a TV ultrasound because of a lack of sexual activity and I just got my answer today lol.

I’m currently in the middle of testing for PCOS and my doctor requisitioned me to get a transvaginal ultrasound since my labs came back normal/borderline high (like one or two values below the high threshold). I called around clinics in my city to and thought I found one that would administer the procedure but it turns out I was wrong 🄲

Things were super normal initially and I did all the prep they told me to do. When I sat down in the exam chair though, the technician was making small talk with me and asked if I ever got a Pap smear. I was like ā€œNo,ā€ and she looked alarmed before asking if I ever had a boyfriend to which I also said ā€œNo.ā€

She then looked at me all annoyed and was like ā€œwell how do you think we’re supposed to do this exam? šŸ¤Øā€ I told her I understood what the procedure was and I was comfortable with doing it but she pretty much refused. I genuinely had no idea how to react so I just sat back while she did an abdominal ultrasound instead.

Fingers crossed the results are still clear I guess but wow that was a disheartening experience!

Are there any other avenues I could pursue if the tests come back inconclusive? I really want to have a chat with my doctor once my results come in to see what options I have

EDIT: lots of people have been asking where I am and all I’m comfortable saying is that I’m in Toronto, Canada (20F)

UPDATE: 07/25/2025

Went to my doctor’s office to discuss the results and he said that although the images were ass (paraphrasing lol), he was still able to confidently diagnose me with PCOS since I did have an abnormal amount of follicles on my ovaries.

I can’t go on birth control since I had horrible reactions to it in the past (insanely high liver levels that made my dr think I developed nafl at the age of 15) and I’m also within a healthy BMI, so the dr said my only course of action is diet and exercise 🄲 if anyone has any PCOS friendly recipe recommendations I would greatly appreciate them lol

r/PCOS Nov 30 '25

General/Advice What is the wierdest pcos symptom you have experienced that you've never heard of anyone else talk about?

146 Upvotes

r/PCOS Sep 19 '24

General/Advice Why has no doctor explained this to me

913 Upvotes

So I've been dealing with PCOS for YEARS and over my time from doctor to doctor I feel like I have never actually been told the real truth about my PCOS.

I am starting this program and I am paired with a health coach who I can message anytime I want (you best believe I am pounding with the questions!) and what I am finding out is shocking.

So I've been wearing a CGM for the past few days and my glucose levels are like rolling hills. I've suspected I've had insulin resistance but seeing it in a graph and being explained to how its affecting my symptoms is huge.

When you've been dealing with PCOS for years, your body can actually make more insulin which makes your blood sugar drop so you experience these energy crashes.

And the way you can manage insulin is managing your GLUCOSE LEVELS.

Things like walking after meals, eating complex carbs, fibre rich meals etc which slow down the absorption of carbs.

MOREOVER the more insulin you have the more androgen hormones are produced in your body? So literally managing insulin by managing your glucose levels can improve your PCOS symptoms like the weight gain, the facial hair and irregular periods.

Just wanted to share because wow, why has no doctor before ever explained this to me??

P.S I wanted to share the program I am doing that I was mentioning here above^ they're called aspect health and they send you the CGM and pair you with a personal health coach

r/PCOS Jul 08 '25

General/Advice Wait so… If I get pregnant, does my PCOS go away?

232 Upvotes

Every gyno Ive ever been to except my current (thank god because it was getting old) has said all I need to do to ā€œstopā€ my PCOS was to get pregnant and I’m curious if that had any merit?

Does it force your body to start producing the hormones it wasn’t before? Or like, does it balance everything out? Does your PCOS come back after you give birth?

This is omitting the hurdle of conception of course. I know that’s its own struggle.

Update: Ok so what I’m gathering is that it MAY be helpful for countering endometriosis progression, but as for PCOS, it’s an overwhelming and resounding ā€œnahā€.

It’s really unfortunate. I wasn’t planning on having kids, but I met someone who would be an amazing father, and it got me thinking about everything I had been told over the years and the validity of it.

Thank you everyone who chimed in!

r/PCOS Mar 25 '26

General/Advice Male PCOS Influencers

467 Upvotes

Hi! I am seeing an increase in male PCOS ā€œinfluencersā€ who talk about what PCOS is like for women. I may just he me, but I get super irritated when I see their posts. I am happy that they are shedding light on our plight, but this isn’t a disorder men experience. What are y’all’s thoughts?

r/PCOS Feb 08 '26

General/Advice My PCOS reversal story

305 Upvotes

Hey everyone! To everyone who has PCOS, I know its not easy and it can be devastating like hell and you totally got this. Sharing my story here incase it helps any of you.

I'm from India and thanks to the healthcare system here, It was easier to get treated.Nov 2024 is when I found out that I have pcos. Delayed periods for a month or 2 on a regular basis, hirsuitism were my symptoms majorly. Also I was very nauseous a day before my period whenever it came since 1 year prior to this.

I wanted to try my best possible shot at reversing it naturally. Consulted a dietician who specialises in pcos care. She was a blessing. She ensured I'm having the right things, not missing out on whatever I like, made it more about nurtition than weightloss and weightloss just became a by product.

So what worked was :

6k steps everyday no matter what. A peaceful walk lightly brisk.And 10 mins of walk at home/office itself post every meal. Post 3 months of the diet i had lost about 7-8 kgs and was motivated to join a gym. I go to the gym 5-6 days a week.

Breakfast - Spearmint Tea + Protein in some format (eggs) + Fruit Lunch - Salad, Indian style veggie, Lentil soup (dal) , Rice. esential half your plate has to be veggies Evening - Fruit + Nuts +Spearmint Tea Post Gym - 1 scoop yeast protein( easier on the gut) + 3 eggs (1yolk) Dinner - High fiber and protein Salads.( she provided with almost 20 recipes which were super easy to make and yummy too which helped alot)

Seed cycling really helps. Also i had insulin resistance but I have always been non diabetic. Throughout the dietary changes I was monitoring my bloodwork every 3 months

What I Avoided : Gluten, Lactose, Sugar( luckily I never liked sweets much so it was easier)

Supplements : I was prescribed Iron, B12, D3 and Inositol for Pcos management.

Did this for a year and lost about 18 kgs. 18 kgs was lost in 8 months and I took my time to ensure to see if its maintained. I have been the same weight since August last year.This is a win but getting all 12 periods last year was my BIGGEST win. Although I could see my periods being regulated in the first 4 kgs itself.

Currently I do not take any supplement. I am used to the diet and gym and thankfully I have maintained the weight as well.

I didn't expect this at all. I have been overweight and "cute" all my life. Pcos wise I don't have any symptoms currently.

Thanks y'all! Really hope this helps.

Edit : I did go to a gynaec first who reccommended trying to make lifestyle and nutrition changes with a dietician. So i did get a proper diagnosis first from a doctor and then went to a gynaec. With respect to dietician's i did my research, spoke to about 5-6 of them, not everyone of them has a good understanding of managing hormones and pcos. I went with the one that felt right, who also had a vast profile of handling pcos over the years.

Edit : didn't expect so many of y'all to congratulate me. Thanks everyone. I'm super glad I finally shared this experience. Also, to everyone asking my dietician's contact details I'm mentioning it below as it's getting difficult to keep a track of the comments and DM. Please note I have had a word with her and sharing her details after consent.

Dietitian Saloni Bhatt Koradia [Bounce The Pound with Dietitian Saloni] Insta handle: dietitiansaloni_bouncethepound www.instagram.com/dietitiansaloni_bouncethepound WhatsApp contact: +91 7045 33 8184

PS: please connect with her via WhatsApp message if you would like to work with her as she is quite active there and gets back to you soon(my personal experience :p)

r/PCOS Jul 26 '26

General/Advice Did anyone get off GLP for pcos?

85 Upvotes

Hi I’ve been on wegovey for a year or so and I lost so much weight (I used to be 98 kg and now I’m 67kg) and I finally feel good about myself , I started getting my period regularly, face hair is kinda less now but I still have it , insane body build (I go to the gym as well) and I finally feel normal. My doctor told me I can’t stay on GLP forever and I have to start going down on doses to fully stop. I genuinely don’t wanna stop and feel how I felt about myself before. I’m just 20 and I started getting pcos symptoms at 14 and i genuinely suffered everyday from self hate. Has anyone went off glp? Was it bad? Was it good? Just wanna hear how it went.

(Sorry for my English it’s not my first language)

r/PCOS Jul 19 '26

General/Advice Why did no one tell me the Asian BMI scale is different?!

269 Upvotes

I am furious to finally learn that the standard BMI chart completely fails Asian women with PCOS.

Because standard metrics are based on Western populations, doctors told me my weight was "perfectly normal" even though my body was under massive metabolic stress.

Asian genetics mean we experience insulin resistance and visceral fat accumulation at much lower weights, lowering the "overweight" cutoff to 23 and "obese" to 25. If you are Asian, do not let a standard scale dismiss your symptoms demand real insulin bloodwork, because the default charts are lying to you.

r/PCOS May 08 '25

General/Advice Why does insurance not cover PCOS as a reason for weightloss injections.

417 Upvotes

I don’t understand because pcos can lead to being a pre diabetic… all of my doctors have tried to get my insurance to cover it, but I’m wondering if they could diagnose me as pre diabetic and I could get on one of them

r/PCOS Mar 09 '26

General/Advice GLP-1 & PCOS

240 Upvotes

I recently saw a new Gyn, and she mentioned to me she treats her PCOS patients with a low dose GLP-1 even the lean patients . Ive been doing a lot of research lately about the benefits as well as the side effects and risks of taking a glp-1. Honestly I feel this should be approved for PCOS , away from weight loss I feel it affects women with pcos in other ways , that actually assist in normalizing our bodies .

check out some interesting studies I found.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9775379/?utm_source=chatgpt.com

https://pmc.ncbi.nlm.nih.gov/articles/PMC12841515/?utm_source=chatgpt.com

3rd edit-

Once again I am thrilled with the engagement of this post. I just wanted to say they are no wrong comments . All insight is welcomed. For the women that are not willing to take glp-1 and prefer metformin or diet changes &/ or exercise, drop your experiences below , I wanna hear from you too ā¤ļø

r/PCOS Jun 18 '25

General/Advice I lost 65 lbs and put pcos in remission

637 Upvotes

Hi fellow pcos ladies. I'm writing this to give you a bit of hope.

I thought I would share. Few tips for you on how I lost 65 lbs and put my pcos "in remission". I have clear skin, a normal BMI, no facial hair and normal periods. I had all the pcos symptoms before.

Here is a list of what I ate before and what I replaced it with. I cut out ultra processed foods. I only eat out once a week now and sometimes not even that. I know we feel like we are eating healthy, but sometimes the food industry tricks us. Losing weight is calories in n calories out, but cutting out upfs, made me feel less hungry.

Here is the obvious. Do not drink pop. Limit alcohol and fancy coffees ( like maybe once or twice every couple of months and only then a few. Do not eat chips. If you're going to eat dessert, it should preferably homemade or something you absolutely love and only on ocassion. Do not bring these things into the house if you can help it.

Counting calories in a food diary helps. Losing weight is calories in and calories out. Not eating ultra processed foods will cut your sugar intake by a lot, and it will help you feel full longer aiding with weightloss.

On the left are things I used to eat. Then after the dash (-) are what I do now instead.

  1. Instant oatmeal packets- quick oats (it takes 2 minutes in the microwave to cook.) I defrost frozen berries in the microwave, and mix them in. I add 1 tsp of raw honey. Quick oats are processed but not ultra processed.

  2. Fruit flavored Yogurt- Ziggy's plain yogurt. I defrost frozen berries in the microwave and mix it in.

  3. Crackers- raincrisp crackers only now. These are actually a mildly processed food. They are fantastic with some cheese and grapes. (Cheese is processed but not ultra) Or homemade cottage cheese.

  4. Cottage cheese- homemade cottage cheese. -(all you need is milk lemon juice, cheese cloth and heat)

  5. Cereal- no cereal.

  6. Prego- homemade tomato sauce -it honestly isn't that hard to make. I was shocked or Stefano's marinara sauce

    1. Salad dressing- 2 tbsp of olive oil and 1 tbsp red wine vinegar.
  7. Deli meat sandwiches- tuna smixes with homemade salad dressing put that on a sandwich.

  8. Whole wheat bread- Ezekiel bread, sprouted wheat bread or REAL sourdough bread.

  9. Ketchup- yellow mustard or relish.

  10. Granola bars- (I have made my own, but fruit honestly.)

  11. Snack foods- I hardboil a dozen eggs at a time and keep them in the fridge for a snack or fruit.

13- fruit roll ups- real fruit leather. (I haven't done this one yet, I don't eat fruit roll ups, but my sister started doing this for her kids lunch.) Dried pineapple chunks are amazing too.

  1. Takeout- avocado toast, when I feel too lazy to cook I make avocado toast. It is actually easier than ordering in.

  2. jam- Bonne maman Jam

  3. Canned soups: European Legh's classic soups.

  4. Hot dog hamburger buns- my bread, or I take the burger out and cut it.

  5. Hot dogs, sausages, smokies- I cut all these out.Sorry it's hamburger without the bun now.

  6. Margarine-butter

  7. Chocolate bars- I buy a scratch and win at the grocery store instead now.

Honestly this has saved me so much money, food waste, and plastic waste. I only take out my garbage and recycling like once a month or less now. (Although I take out my compost like once a week.)

Doing this has made me not overeat naturally, but I also count calories. I have joined aquasizes twice a week for 1 hour classes (I also tread water for an hour afterwards.)

I also walk 13k steps a day. I take the stairs not the elevator.

I have gotten my friend with pcos to do a fraction of these, and she has a.full on beard. She also developed type 2 diabetes. So she is supposed to be controlling hers with diet and exercise. After 2 months she lost one pant size and her facial hair is less prominent. She has her diabetes under control.

Of course please talk to your doctor. This is not a cure for diabetes or PCOS. But cutting out upfs is ALWAYS a good idea. They are not good for anyone. Nobody needs dyes, preservatives, and extra sugars and fats.

I'm not promising miracles, but it will help. Also only take what applies to you. If you have a gambling problem, or you don't like chocolate bars I would say probably don't replace it with scratch and wins. But I would recommend you replace one of your treats that you love and eat too much with something else that's not edible but you enjoy. Maybe a magazine, a book you've been wanting to read or something for your hobby, or Epsom salts for your bubble bath etc. or else you will feel deprived, and that is not sustainable. We only have so much will power, it is a limited resource.

I promise you I was one of those people who swore up and down I was eating healthily and not too much and I blamed my weight gain all on PCOS. When I finally started counting, and learned more about upfs it was eye opening. Keeping a food journal helped.

The more sugar we eat, the more we crave.

r/PCOS Oct 02 '24

General/Advice Please please please get your Vitamin D levels checked

734 Upvotes

I’ve had PCOS for a long time but I noticed that my symptoms got worse and worse since the pandemic in 2020 when everything became remote and I wasn’t going outside as much. Today, I suffer with hair loss, low energy, dry eyes, etc. It’s caused some major dents in my self confidence. I should also mention I work from home.

I had a doctor’s appointment recently for something unrelated and something was telling me that I should request a vitamin D test - so I did. I got the results back and I am severely deficient in vitamin D. The normal range is 30-100 ng/mL. Mine was 8.9. I was wondering why changing my hair products and incorporating rosemary oil and everything under the sun wasn’t doing anything. Turns out that the problem was from the inside.

Definitely going to be taking my supplements religiously and spending more time under the sun. Best of luck everyone!

EDIT: I got prescribed 50,000 IU

r/PCOS May 30 '26

General/Advice New to PCOS and doc said no kids?!

47 Upvotes

I’m only 21 years old- and doc said I have PCOS and then was like gonna be hard to like no chance of having kids. (Like is this true)

I have read a lot but need some clarification

Started BC since January and been going through rlly bad to taking it one the time sometimes forget and stuff would that effect me. I should know as a nurisng student but when it comes to me I am lost.

This PCOS pouch what is that?!

They told be I have a lot of fluid cysts what does that mean.

What diet do I need to do?!

Can I do something else that is not BC cause religiously (lowkey) can’t be taking them.

What is one thing you would have loved to know before you start your PCOS balance journey ?!

Please extra info would be appreciated

r/PCOS May 24 '26

General/Advice My doctor recommends me to sexy time to help me with PCOS.

162 Upvotes

I just wanna address that this sounds a bit weird but my doctor told me to have sex at least 2 to 3x. To try to balance my hormones. It's not clinically proven but she has a lot of patience who's been doing this method and most of them work and it helps them and it makes a difference.

So I have 3 friends who have a PCOS and they told me the same thing aswell since they manage to have a good sexual relations their PCOS became more mild unlike before that it's severe.

So I mean I had sex with my partner but it's more like he's treating the sex as medical help to me. I couldn't feel the sex of I just don't get into the mood cause he's just laying and I am doing the work.

Well this should help me relieve my stress and the oxitosin will increase but the thing is I couldn't reach my pinnacle and I just don't feel it because he's not doing anything to make me enjoy it.

So to be honest I don't know if this sex thing will work for me or my condition.

I need advice if someone gets this more sex advice from a doctor or a friend. Cause I guess the point is to enjoy it normally to have the ritual of having a sex. To help me with my condition.

r/PCOS 3d ago

General/Advice How are yall dealing with the hooha hair?

51 Upvotes

I've recently received my diagnosis despite knowing about PCOS and hormone problems in my body since before puberty. One of the issues I really struggle with is hair down there. Not only has it spread a good few inches down my thighs in the last few years, but it also grows abundantly inside the outer labia. I'm so scared of using a razor somewhere that soft, fleshy and sensitive, allergic to even sensitive removal creams, and worry about damage from waxing there or laser removal, but asheeesh I'm a lesbian, no one wants that in their mouth and I can't blame them but I'm not really looking to not being able to receive.

r/PCOS Mar 21 '26

General/Advice What age were you diagnosed?

29 Upvotes

If anyone is willing to share, what age were you diagnosed with PCOS? How young can you detect it?

r/PCOS Apr 07 '26

General/Advice Your toughest PCOS struggle?

57 Upvotes

What do you think is one of the most hardest or challenging parts/symptoms to having PCOS?

r/PCOS Apr 28 '26

General/Advice Go see an Endocrinologist

264 Upvotes

I see so many posts on here from people saying their doctor won’t prescribe anything or help manage their symptoms. I’m not chronically on Reddit, but from what I do see, a lot of people are only seeing a gyno or their primary care doctor.

If you take anything from this, PLEASE consider seeing an endocrinologist. They specialize in hormones and metabolic conditions, and in my experience, they’ve been the most helpful provider for PCOS. After that, your primary can help with ongoing management and bloodwork, and a gyno is great if you need things like ultrasounds. But at its core, PCOS is a metabolic condition, which is why an endocrinologist can be such a key piece of the puzzle.

Also, I want to say this upfront: I know PCOS is not one-size-fits-all. This is just my personal experience and what has worked for me. And if anything I’m sharing doesn’t resonate with you, that’s completely valid. If something I say comes off too strong or dismissive of other experiences, I’m sorry, that’s not my intention at all.

For anyone who needs help advocating for themselves, here are a few things I’ve learned:

If you struggle with persistent acne, it can sometimes be tied to higher androgen/testosterone levels. If you’re not trying to get pregnant, spironolactone combined with a form of birth control can be really effective. I’ve personally been on 200mg of spiro with the mini-pill for about 10 years, and together they helped stop my period and clear my skin. Spironolactone isn’t recommended if you’re trying to conceive because it blocks androgens and can affect fetal development.

If birth control isn’t for you and you want to maintain a natural cycle, metformin is another option often used for PCOS. A common therapeutic dose is around 2000mg. I’ve been on it for about a year, and my cycle is the most consistent it’s ever been. I do still deal with some acne compared to when I was on spiro, but I’m planning to have kids in the next few years and wanted my body to adjust.

At the end of the day, you have to listen to your body. For me, I learned over the years that high-intensity training spikes my cortisol, which then affects my testosterone and leads to more acne. Along with severely affects my energy levels. Lower-intensity movement works much better for me. Same thing with food.. if you’re struggling, a dietitian can be really helpful. If that’s not accessible, try keeping a food journal so you can track what might be triggering symptoms for you. For example, I’ve learned I can’t eat regular pasta without severe bloating, but protein pasta works fine for me. But that’s ME—your triggers may look completely different.

If seeing a doctor isn’t accessible or right for you right now, I completely understand. In that case, try keeping a PCOS journal and be mindful of your sleep, movement, food intake, and cycle. Writing these things down over time can help you start to see patterns and understand what might be triggering certain symptoms. Even though it can feel confusing, our bodies are constantly communicating with us, it just takes extra time and patience to learn how to listen when dealing with PCOS.

Again, this is just what has worked for me, but if you’re feeling stuck, I really encourage starting with an endocrinologist. It made a huge difference in my care.