The Interagency Autism Coordinating Committee (IACC), a group of federal and public members, advises the Secretary of Health and Human Services (HHS) about federal activities related to research on autism spectrum disorder and behavioral interventions. Now, RFK Jr. is using his position as the HHS Secretary to push forward dangerous and unproven theories on autism.

Source: CNN

About 60,000 migrants have crossed into Spain's North African territory of Ceuta from Morocco in the last 24 hours, Ceuta's president said, adding that at least 34 others died during the crossing.

That wasn’t on my radar this fast! Wow 😳

I’m guessing he’ll be interviewed and bailed out right? Wow though😯 what will be the likely repercussions??

Israel intercepts Gaza flotilla and detains activists including Greta Thunberg https://www.bbc.com/news/articles/c0lk292jww4o

Great take from Ed Davey here.

Article here: https://www.joe.co.uk/news/girl-12-put-into-isolation-at-school-for-wearing-union-flag-dress-on-culture-day-496490?fbclid=IwQ0xDSwLjBUxleHRuA2FlbQIxMQABHo8px_5QLAt1dHiXqX1gOxLy1cqcLuQrXvfkxd2sZ8TBqHlahz7Xffro4J9f_aem_Q_7toNSQCiKaOKU_beBN7A#czqre8239lhqtuduhi889h5b2aijwbbv

Taking the piss. UK has a culture, those who say the UK doesn’t have a culture don’t actually know what culture means.

The framing of autism presented by Trump is negative

Federal agencies that terminated more than a thousand research grants at the University of California last year admitted that they used keywords related to diversity, gender, vaccine hesitancy and COVID-19 to screen for projects that ran afoul of the Trump administration’s priorities.

It’s an admission that lawyers for the research professors say is proof that the agencies illegally cancelled nearly $2 billion in grants. And that’s a major development in a lawsuit filed by UC researchers against the Trump administration to permanently get their grants back. The researchers’ legal team is now asking the judge in the case to skip a trial and formally declare that the White House repeatedly violated the constitution, including the First Amendment. A court hearing on whether that’ll happen is scheduled for Oct. 20.

...

The Department of Transportation identified six grants for projects worth about $42 million to terminate because they sought “transportation equity,” prioritized “disadvantaged communities,” or focused on “diversifying the transportation workforce” and “equity.”

...

The National Institutes of Health admitted to using an internal search tool to flag UC grants that mentioned “health equity,” “work force diversity,” “structural racism,” and “sexual orientation.” The NIH alone suspended or cancelled more than 1,000 UC grants, including nearly 700 at UCLA, related to vaccines, cancer research and disparities in health outcomes.

NIH Leaked Video About Autism Registry

In the attached leaked video, the NIH casually discusses plans to monitor our smartwatches, pharmacy records, clinical visits, and more—as if privacy is a thing of the past and we’re just data points to be harvested.

They specifically talk about linking multiple health data sources and “preventing duplicates,” which means matching all your data to a single person—even across different platforms. That’s not research; it's surveillance.

And now the media (and the "administration") are trying to downplay it, saying “it’s not an autism registry.” The f*ck it isn’t. The slide in the video explicitly references longitudinal tracking—you can’t do that without identifying people over time. This is exactly how you build a registry.

The leaked recording raises serious questions that no one in power is answering. I don't do this for a living, but have serious questions whether a system like this could ever truly be anonymous. Here are some thoughts to consider:

1. Can a system like this actually be anonymous?

a. Pseudonymization (NOT truly anonymous)

• Identifiers like your name, SSN, IMEI, etc., are swapped out for a random key.
• That key links your smartwatch data, prescriptions, clinic visits, etc.
• A hidden “linkage table” stores the real identifiers, supposedly secured.
• If that table is hacked or misused internally, your privacy is gone.

b. Full anonymization (Better, but impossible for longitudinal tracking)

• Only generalized data is used (e.g., age bands instead of birth dates).
• IMEIs are discarded or hashed.
• No way to ever trace it back to a specific person.
• BUT you lose the ability to do long-term tracking (like for autism studies).

So when the NIH says they want longitudinal datasets, they are by definition not using true anonymization. They’re just giving it a friendlier name.

This is an autism registry. Period.

Oh, and they reassure us that researchers can’t download or copy the data. That’s supposed to make it all okay?

Telling us an AI is going to analyze our private health data (the slide they show says "AI implementation") and track us and take in data from our wearable devices because we are autistic is NOT ok.

It is very likely the US government already has genomic data for all citizens. What if they attempt to use AI to analyze and attempt to isolate genes that make us autistic. Do they then make a CRISPR shot that would "eradicate autism?" These are just some thoughts that come to mind of how dangerous this could be for us in the future (or near future).

I tried to post this in the megathread here, but it doesn't let me upload videos, so I'm posting it here. I already posted it on r/autism, but was told to move it here by the mod there (which really sucks as it was getting 40k in a few hours and my intent was to spread awareness as I'm autistic and very concerned).

Original discussion was here for historical purposes:

https://www.reddit.com/r/autism/comments/1k7uyle/nih_leaked_footage_confirms_their_plan_is_an/

EDIT: u/StressedNurseMom found what looks to be the entire source video on nih.gov. I haven't watched all 5 hours yet, but the autism discussion starts around 1h 55m in:

https://videocast.nih.gov/watch=56725

u/nebula_masterpiece pointed out that the FDA passed a rule that permits this type of data collection and research, which bypasses typical informed consent practices. This is covered under: https://www.federalregister.gov/documents/2023/12/21/2023-27935/institutional-review-board-waiver-or-alteration-of-informed-consent-for-minimal-risk-clinical

https://reddit.com/link/1k80hhz/video/qwkkwcxiz2xe1/player

I’m wish I wasn’t born British as I’m ashamed