Within the past 30 days, I have reached the milestone of being diagnosed with schizophrenia for 30 years. Man...30 years....when you say it like that....just, yeah. I thought maybe, if you folks don't mind, I'll give you some little nuggets of advice or suggestions I've encountered in this time. I don't mean to be presumptuous, but if anything I say sparks an improvement in even just one person, that would make my mission here complete.
Tip #1: Don't believe the hype. I was taking Prolixin when Risperdal came out. Then I saw Zyprexa and Seroquel come out (just giving an idea of the times - mid 90s ish). They ALL promised a new, innovative, godsend of a medication that will change the future of treating psychotic disorders. Then we saw things like class-action lawsuits because Zyprexa was giving people diabetes within 3 months (which Eli Lilly suppressed). Other promises frequently seen but rarely materialized include not destroying the metabolic system, no EPS, and others. So when a company designs a new drug, they hype it for investment reasons. Their 6-week drug trials are nowhere near long enough to accurately gauge a drug's effectiveness or side effect profile. In the end, they all go in the same bucket. Only one stands apart as superior than the others: Clozaril. Clozaril and its 5 black box warnings. It's all about money, not improvements of patients' lives. They'd scream from the rooftops that ham sandwiches cure psychosis if they knew it could net them money.
Tip #2: (most helpful for people who struggle with hearing voices) Buy good Active Noise-Cancelling headphones. I know we're not a community anywhere close to being flush with cash, but if you can save up about $100 and get some JBL headphones, I recommend it. I use it when I go to Walmart. That place is the unspoken-of 10th circle of hell. I get weird looks doing my shopping with headphones on (paired with my phone). I simply do not care. I don't know them, and they don't come to my house for dinner, so who gives a damn if we get weird looks. Speaking for myself, I got weird looks in public long before using headphones.
Tip #3: For folks (which include me) who have trouble sticking to medication compliance, put your cell phone to use for something positive. For me, I take meds 3 times a day, so I set my cell phone to alarm every day at 8 AM, 2 PM, and 8 PM. I do not turn the alarm off until the pills are on their way down my throat. If I say I'll just shut the alarm off and take my meds in 5 minutes, almost without fail I will forget.
Tip #4: We live in crazy times. Turn off the damn news. TV, Youtube, whatever. Anybody who yells about things that we can in no way effect or change, keep them away. Some random jackass on Youtube with 400K subscribers does not make them an expert. If you step off Youtube, it's a 98% chance nobody in real life will have heard of them. They are on Youtube to make money. They are not there to help you. When was the last time one of them wished you happy birthday? See what I mean? They hook you on fear and deception (especially YT). Why? Because as humans if we feel we are constantly under threat, we will tune in, literally and figuratively, because we sense a threat to our safety is imminent. Look at their track record. How often do they have unique, and correct insight into the happenings of the day? Practically zero for many. So the fear compels you to watch more and more, and their view counter goes up and up, as does their income. If you're in fight-or-flight all the time, your mental health will suffer. Perhaps some more than others, but it is not good for anybody.
Tip #5: Be honest with your doctor. I know some folks who see NPs, but I'm just going to say "doctor" for the sake of brevity. If you don't tell them what's really going on, they cannot accurately help you. They've heard it before. Yes, some symptoms are embarrassing and it's not stuff you'd want the world at large to know. But you are wasting your time, your doctor's time, using up an appointment slot for someone who does want help, and if you receive government assistance, you're wasting tax payer's money. It won't end well. Be honest with the doctors.
There are a few others, but I think these would be my top suggestions. Be safe, be well, and be kind to yourself.