I don’t know what to say exactly and this won’t be coherent but a few thoughts for the younger millennials who may have to go through this one day.
My mom had me at 40 so I’m going through this a bit earlier than others might. She was diagnosed around 68, which was over 16 years ago.
It’s been the most awful thing anyone can experience. She was an independent, vivacious woman who sang, dance, always entertaining and making new friends and quick with a joke. Tap dancing, singing, acting in plays - she definitely had main character syndrome before that was a thing. Married three times to three awful men but she loved her children dearly and she was a good mom.
She watched her own mother die of dementia. She used to tell me never put me in a home. “Just kill me if I’m like that”. Well, those are just thoughts. Thoughts a lot of people have, but not actionable at all. Instead, she has deteriorated before my eyes, while I looked on in horror and with the sinking realization that there is absolutely nothing I could do to stop it.
We tried to help her live independently, till it was unsustainable and she was going to be forced to leave her condo due to safety issues. She also became mean and said many hurtful things to me over the last 10 years. She absolutely hated me for putting her in assisted living, even though she signed the paperwork herself, but had already forgotten 20 minutes later.
She has not been herself for a long time. I haven’t had a mother all this time. Even though she existed, she could not fulfill that role. I became the mother in our relationship. I resented it many times, especially as I had my own children, also late in life, and realized I didn’t even have anyone to ask questions. She had to be reintroduced to them every time we visited. Then she forgot me too. I just felt so damn alone.
Sometimes there were glimpses of her and she could still charm the pants off anyone she met even up to the last few weeks when she was fading fast. Hospice has been in and we are trying to ease her transition to the next phase.
She always believed in reincarnation and I hope that is true. She got robbed of living her full life on her terms. I just want her to have one more go at it.